All attendees are invited to share their research and network at our Poster and Networking Reception. Posters were selected from abstract submissions based on basic science and/or clinical studies related to neurodevelopmental disorders. Awards will be given for top presentations based on degree status (Masters, Doctoral and Post-Doctoral). We look forward to sharing and networking with Trainees and Investigators at this session.
Children and youth are commonly considered incapable of understanding and participating in discussions and decisions that affect them. Consequently, their input is frequently discounted. We will discuss current research and practice innovations which demonstrate that the capacities of children and youth are systematically underestimated and that their exclusion from discussions and decisions that affect them can be experienced as harmful. We will also discuss strategies for promoting the engagement and participation of young people in matters that affect them.
Moderator: Éric Racine
Speakers: Franco Carnevale & Dolly Menna-Dack
This session will frame a debate on the interaction between basic research and applied research. The speakers will reflect on their experience bringing basic science discoveries to be evaluated in the clinical research domain. In our current era of patient oriented researchers, the panel will reflect on how patients and researchers can work together most effectively to promote the translation of discoveries in the lab to better patient outcomes. This discussion will also extend to the opportunity to enhance our training programs for patient oriented research that cross the basic-applied divide, and the opportunity to make basic research more accessible to citizens.
Moderator: Derek van der Kooy
Panel: Donald Mabbott, Freda Miller, Rebecca Ruddy
Key responder: Roderick McInnes
Research (both its process and its results) has often been opaque to non-researchers, sometimes, it seems, deliberately so. In this session we will learn from three people who in different roles and mainly through the use of various social media, including YouTube videos, blogs, Facebook, and Twitter, have succeeded in helping families understand research, engage in it as partners, and apply its results. And with so much misinformation and context-free information floating about, especially on social media, our experts will discuss ways of ensuring that what they convey is accurate and sufficiently nuanced while still engagingly and effectively presented.
Moderator: Kate Robson
Panel: Christine Chambers, Louise Kinross, Rachel Martens
Key responder: Ann Douglas
Network and gain valuable insight from leaders in developmental neuroscience during this luncheon. Participants will discuss topics including diagnostics, interventions, genetics, and research models with our expert table hosts who guide discussion and provide personal insight into research as well as career development.
During this session, students and Postdocs will give a short presentation (3mins, 1 slide) that highlights key study findings or outcomes that have an impact on their area of research. The presenters will be selected based on abstracts and “two-sentence highlight” submissions received prior to the conference. This session will give trainees wide exposure to our conference audience and a brief introduction to their posters.
Moderator: Lucy Osborne
Outcome measures are tools that may be used to assess a change in particular attributes of a person over time, in areas that are thought to be meaningful in a person’s life. The outcomes we measure are linked to either the effects of a particular intervention or program, or the impact of a disease or health condition, and are utilized to answer research questions. This session will provide an overview of the importance of selecting the ‘right’ outcomes that matter most. The tension between the different perspectives of researchers and patients will be shared, through illustration of ‘outcomes that matter’ for youth with a congenital heart defect and children with cerebral palsy.
Moderator: Annette Majnemer
Panel: Beatrice Latal, Symon Hay, Darcy Fehlings, Katie & Richard Suggitt
Key responder: Lorraine Sunstrum-Mann
In this session, speakers will unpack the notion of “patient engagement” in pediatric neurodisability research and explore its potential benefits and challenges. Attendees will come away from the session with a fuller understanding of some of the issues surrounding efforts to engage patients and their families meaningfully in pediatric research. Speakers will share their experiences and reflections, encouraging dialogue and thoughtful analysis of the current state of patient engagement initiatives.
Opening comments will be presented by Jennifer Johannesen. Drawing on her experiences of parenting a child with multiple undiagnosed physical and neurodisabilities, Jennifer will present a parent’s perspective on patient engagement in research, and will discuss what she considers would be helpful to children and families. Jennifer strongly advocates for brain-related research projects to extend beyond current confines, to include consideration of a person’s social environment, family context and other realms typically assigned to the social sciences.
Moderator: Donna Thomson
Panel: Jennifer Johannesen, Evdokia Anagnostou
Key responders: Franco Carnevale, Julie Drury